Papa Murphy's grand opening raises money for Cystic fibrosis

Papa Murphy's grand opening raises money for Cystic fibrosis

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by AMY COWMAN / NBC Charlotte

Bio | Email | Follow: @amywcnc

WCNC.com

Posted on March 1, 2013 at 7:26 PM

Updated Friday, Mar 1 at 7:41 PM

CHARLOTTE, N.C. -- It's hard for any parent to imagine their child having an incurable disease. One Charlotte family is using their new pizza franchise as a way to raise awareness and money for Cystic Fibrosis for their daughter,  Vivian.

"When she was born it felt like a death sentence," said mother Sally Ware.
 
Six-year-old Vivian Ware was diagnosed with Cystic Fibrosis at just nine days old.  It was heartbreaking news for her parents, Sally and Chris Ware.
 
"I couldn't allow myself to envision her finishing college, getting married," said Sally.
 
Every day of her life requires three to four hours of treatment, including nine medications, dozens of pills, feeding through a tube and twice daily percussion vest treatments.
 
"It's kind of like having pnemonia all the time, so their lungs are full of mucus," said Ware.
 
But instead of feeling sorry for themselves, they got involved, creating Team Vivi to raise $10,000 a year.

That money goes towards research that helps raise the life expectancy of patients each year. Right now it's in the mid 30's, which is still a harsh reality for a parent.
 
"Anything I can do to help raise awareness for Cystic Fibrosis and forward the cause and help find a cure makes me feel like I'm doing something in taking care of my daughter," said Chris Ware.
 
The Ware's also focused their careers around it. Sally attends nursing school and they opened a new business, Papa Murphy's franchise, which allows for more family time.
 
"I wanted some flexibility with time with Vivian because of her treatment schedule and things of that nature.  I wanted to be a better parent for her," said Chris.
 
Now, they're using their grand opening as a chance for you to help, too. If you walk a lap at Ballantyne Elementary School track, Papa Murphy’s will donate money and a bonus--there's free pizza and prizes.
 
"For us, the best way to deal with it or feel like we have any control at all was to get involved with the CF Foundation because if you're raising money you feel like you're actively doing something to help," said Sally.
 
The grand opening of the Papa Murphy's is Saturday, March 2 from 11 a.m. until 2 p.m. at Ballantyne Elementary School.

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